Helpful Resources and Websites for People Living with Lymphedema

 

LE&RN The Lymphatic Education & Research Network has a plethora of information for people living with Lymphedema and Lipedema.  From finding a Lymphedema Therapist near you, to resource information and the latest research about Lymphedema, their site has it all.  With a one time donation you can become a member which opens you up to many possibilities to be on the front line of awareness, advocacy and more.  If there is a Lymphedema Bible this site would be it.


Brylan's Feat Foundation.  is a non-profit that helps families who have children living with Lymphedema.  From financial support to helping with the necessary treatments children need.  This is a wonderful foundation, even if you don't have a child living with Lymphedema I encourage you to read their story, mission and vision.  I had the pleasure along with other women with Lymphedema to participate in a virtual fundraiser.  Seeing pictures, videos and hearing about the children they have been able to help was beautiful, I hope you can take a look.



Lymphedema Community is an online community with other people living with Lymphedema.  You can create a free account and have access to wonderful amenities such as their live chat groups, reading blogs from other members or you can create your own.  Post questions to people in the community and have the chance to share your experience with other member who ask questions.  I know living with Lymphedema can at times feel lonely and isolating, especially while we're in a pandemic.  This is a great way to connect with others in the comfort of your own home.





The Lymphedema Treatment Act is to give medical coverage for people living with Lymphedema for their medically necessary compression supplies.  It passed in the House of Representatives 12/12/2009 and now needs to be passed by the Senate.  This is where you can find more information on how you can help.  This page has information about the Bill, how you can and has additional Lymphedema resources.

Comments

Post a Comment

Popular posts from this blog

A leg by any other name would be as big.

Image
I guess it's time to introduce Bertha, my previous post might make a little more sense.  Some women name their boobs, I name my legs.  My skinny "normal" leg is Tiffany who I imagine would be a cheerleader and a runner.  And then there is my lymphedema leg Bertha, who bakes likes science.  Ok I know that is so stereotypical, but it's makes me laugh and makes other people feel awkward.  I mean they named a golf club "Big Bertha" so really I'm just following suit.  Bertha has been with me since 2007 and isn't going away anytime soon, so it was only proper she be named.  We have a love hate relationship, but in the end she is a big part of my life and according to my husband "his favorite leg in the world."  Yes you can "awwww" now.  And yes I hit the jackpot with him.  XOXO-Allie
Read more

Loving Life In Wide Width Winter Boots

Image
Winter in the PNW means rain, rain, a randomlly sunny day that is like 70 degrees, followed by-you guessed it rain.  Where I live in Oregon we do have some light dustings of snow and every 2-3 years it "dumps snow" which means a couple of inches.  Basically the whole city shuts down when this happens and we all hunker in for the 1-2 days it last.  It's the one time a year I love our steep driveway, it's the best sledding hill!  Winter and rain boots has been one of the most difficult items to find that fit Bertha .  Here are a few style I found that should work for us Lymphies and Lippys. xo-Allie Sorel Out and About Waterproof Bootie Living in Oregon and as a soccer Mom I need a good basic boot to keep Bertha dry.  I especially like these boots, because they are lace up, so you can adjust them if you only have one "Lymphie foot."  This is the boot I've had for the past few years.  I read reviews and decided to size up 2 sizes to a 12 and I'm glad...
Read more

These Boots Were Made For Walking

Image
. . . Or standing in the rain cheering my kids on during their soccer games.  Whether you call them rain boots, wellies or galoshes, living this the Pacific Northwest we call them a must have!  From the kids soccer games to running errands in a monsoon (which we call November-May now) they are a must.  For the past few years I've braved this weather with my Uggs or sneakers.  This year we had 70 days where the sun didn't shine for an entire day!  It may of peaked out for a brisk moment, but has been followed by clouds, rain showers, hail, thunder & lightening, sometimes all within the same day.  You name it, we've had it. Since basically no store carries any practical women's shoes past size 10, I am prisoner to online shoe shopping, crossing my fingers hoping they'll work.  I've been down and out with my back, so I had more than enough time to search for rain boots.  Researching, reading reviews I finally chose a pair, sent up a hail Mary a...
Read more